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Invisible Illness: ME Awareness Week 2019
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    The Stepping Stone

      When you are poorly you visit your GP and

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    Let’s drop Chronic Fatigue Syndrome

    Photos were taken by Millie Clinton, March 2018    Last

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    What is talent?

    Photography taken by Millie Clinton in August 2020 What is

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    I’m sorry you feel like this…

    I would like to firstly admit that this post is

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    2020 in Review

    Photos taken August 2019 by Flo Chapling.  When 2020 kicked

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    Don’t you believe in ME?

    Photos taken in August 2020 by Floirin Chapling Dear Doctor,

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cornerstoneforthoughts

💁‍♀️ Award Winning Content Creator
💁‍♀️Magazine Columnist @ the ME Essential
💁‍♀️ ME Association Ambassador
#mecfs

The Cornerstone For Thoughts
Inspired by @alihemsley and it is something I shar Inspired by @alihemsley and it is something I shared last year and wanted to re-share it because it’s not outdated, the symptoms still exist. They can’t be removed by thoughts and changing thoughts. When I’m having a milder symptom day you see me in make up, fancy clothes and hair: you don’t see the bad painful days. #mecfs #chronicillness
I am one of the 250,000 patients. I have ME. I am I am one of the 250,000 patients. I have ME. I am chronically fatigued. I am more than tired. In my first year after my diagnosis I was ashamed of my illness. I’d been bullied by a work team for an illness, who I was and where I was from. I’d lost friends who thought I’d made it up and couldn’t be poorly looking the way I did. In that year, I wouldn’t tell people in fear of judgement and misunderstanding. Four years later, I own it. I’m not defined by my disability I own it. An ME diagnosis brings missing things. I’m missing from body combat, intense spin sessions, city jobs, city work, charity runs and walks but my voice isn’t missing. I will advocate for myself. I will stand by the 250,000 who lost their voice trying to be part of change in the dialogue surrounding the condition. I’m more than tired. I’m a small fibre neuropathic, chronically fatigued fighter. #mecfs #millionsmissing #meawareness #meawarenessday #chronicillness
5 months, 3000 words and 3 re-writes, my commissio 5 months, 3000 words and 3 re-writes, my commissioned article is now a published essay. It’s published day falls on ME Awareness Day. A day that reminds us that 250K people live with a misunderstood complex neurological condition. I’m not ashamed to live with ME & nerve damage, so much so I have written this piece. I’d love you to share the article here: https://www.dissonancemagazine.co.uk/on-life/do-you-believe-in-me?fbclid=IwAR0aS7TCI6ezLPlr2NX2w4cLglTdaiwVVVUs90TcwKnlfo39wiyhYDXU43c
This week is ME Awareness week; it’s a day which This week is ME Awareness week; it’s a day which rings all so true for the 250,000 people living with the condition. A few myths I want to bust: ‘Exercise helps fatigue’- lies. Exercise can result in patients being worsened, 1/3 of patients end up bed bound for resuming to their normal activity levels. ‘Tiredness ain’t that bad’. Most do not suffer from classic tiredness that can be cured by a nap. It’s fatigue, it’s running with rocks in your rucksack. ‘Can’t a diet fix you?’ Some patients do have intolerances, those who do cut the allergy on the head; but certain diets, shakes and juices will not fix an ME patient. I would therefore encourage, anyone part of a programme which sells juices for weight loss/health to not use chronic illness as a sales tool. Telling someone to think differently won’t help. I’ve lived with ME for four years. Thinking differently won’t make you ‘normal’. ME is a physical neurological condition not a mental illness. #chronicillness #mecfs #meawarenessweek
We had a glorious breakfast 🥞 Doesn’t it feel We had a glorious breakfast 🥞 Doesn’t it feel nice to have a meal cooked for you? I love a weekend filled with great food, great company and relaxation. Ended the weekend with a yoga and meditation session. I’m now bathing and doing the Sunday self care routine. Hair wash, exfoliate, tan and moisturise. 👏🏼 🍓 🥞 🧘‍♀️
Absolutely delighted with the lash lift I had done Absolutely delighted with the lash lift I had done during my lunch break today. Anyone in the Swale area or Kent and prepared to travel, I highly recommend @byjadebeauty who has worked wonders on my lashes 👀👀
I visited my nurse at my doctors surgery today for I visited my nurse at my doctors surgery today for a routine check up, I call it an MOT, without the receipt at the end. Since I was poorly, the nurse has always been my ally letting me have a flu vaccine when receptionists would refuse, fighting my case for the Covid vaccine and thirdly, listening to my symptoms. She heard me. She validated and offered support. It’s a breathe of a fresh air having a medical professional not invalidating or questioning whether your symptoms are right. She put my mind at rest. She heard me. I walked out, lighter in worry. In an ideal world and in a dream I would love to see all medical professionals undergo professional development in chronic illnesses such as ME & Fibromyalgia. #chronicillness #mecfsawareness #fibromyalgia
I had a brain wave. Tan providers, let’s create I had a brain wave. Tan providers, let’s create a bubble bar, bubble bath or bath oil that removes tan effectively: providing moisturise and clear healthy skin ready for fresh application!
If @maltesersuk did a subscription box, I’d happ If @maltesersuk did a subscription box, I’d happily subscribe. If this is isn’t in motion, let’s discuss. 👍
Another bank holiday bites the dust. I round my fi Another bank holiday bites the dust. I round my final day of the bank holiday weekend with a confession and a peculiar feeling. I’ve been experiencing this relapse on and off since May last year. 365 days of numbness, stiffness and pins and needles. From October it’s affected mobility, driving and my mood. To anyone suffering #chronicpain no meditation is going to fix that or make it nicer to live with. Today, I opened up to myself. I feel lost, not literally although my sense of navigation is shocking. I have this sense of who am I? Am I good enough? Questioning myself, and wondering when I’ll get the answers to these probable irrational thoughts. Is there a horoscope link perhaps? Or am I just scapegoating the prob? The latter is the reality. #chronicillness #smallfibreneuropathy #neuropathy #portraitphotography
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