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cornerstoneforthoughts

💁‍♀️ Award Winning Content Creator
💁‍♀️Magazine Columnist @ the ME Essential
💁‍♀️ ME Association Ambassador
#mecfs

The Cornerstone For Thoughts
For disclaimer, I’m currently sat eating malteas For disclaimer, I’m currently sat eating malteasers so I’m no Davina Mcall 😝 Exercise is the devil for many #mecfs patients as doctors want to believe exercise fixes everything. I can promise you, my experience with exercise is a catch 22, I feel empowered in the moment but have a come down often experiencing an increase in abnormal nerve sensations & exhaustion Now, I see many #longcovid patients being given the same advice. 1/5 of patients who embark on a gradual exercise therapy type programme worsen some becoming bed/house bound. Doctors know this from patients in the ME community yet are telling long covid patients to run the fatigue away. Fatigue is not, fixed by running or squatting (if it is, I think you’re using the wrong adjective 😉) #GET #gradualexercisetherapy #exercise #therapy #recovery
Since, I’m still amazed by my breakfast this mor Since, I’m still amazed by my breakfast this morning here is the finished piece. Chuck some cinnamon in and it’s delightful 😜👌 #breakfast #cooking #baking #foodporn #healthyfood #healthyeating #bakedoats #bakedoatsrecipe
In the four years of living with small fibre neuro In the four years of living with small fibre neuropathy and Myalgic Encephalomyelitis I have had to 9/10 justify my discomfort, suffering and pain the reason being..I look OK. Plus, when you live with such a condition you have milder days but you also have moderate-severe days. I was once told, I don’t look poorly or I can’t be disabled. The reality is, many chronic illness are invisible and come in many forms often not visible through someone’s outfit or choice of lipstick. Telling someone they look fine is invalidating and insulting. #smallfibreneuropathy #mecfs #chronicillness #invisibleillness #chronicpain #chronicfatigue
Malteasers did the vanishing act, and that ending Malteasers did the vanishing act, and that ending of Line of Duty. Mother of God 😱😱
It’s Friday!!! This is the first time this week, It’s Friday!!! This is the first time this week, I’ve finished on time. At the start of the year, I’d got into a good habit of finishing on time. It’s four months in and I’m creeping back into the poor habits. Today, I finished on time, shut the home office door! Also making an effort with the appearance and outfit can help to just make home working slightly more tolerable ☺️
When I have my more severe pain, I am told at leas When I have my more severe pain, I am told at least it’s not or oh Sally has it worse than you. It’s toxic positivity plus a form of invalidation. It causes guilt: It sends a message that if you aren't finding a way to feel positive, even in the face of tragedy, that you are doing something wrong.
Research is finally being reported and shown that Research is finally being reported and shown that CBT and GET are not effective for treating or curing #mecfs in almost all cases. Most including myself, round exercise mild-moderate-intense made symptoms either worse or intolerable. My advice to the long covid community, take it from Moi, rest and rest rather than thinking a run/dead-lift will cure you. Society wants a 1 size fits all for complex condition when the reality is far from that. Do you. Do what your body needs & wants! #chronicillness #longcovid.
Can I add, malteaser lover into my findings from m Can I add, malteaser lover into my findings from my lockdown experience??
Work presentations always fill me with dread and a Work presentations always fill me with dread and anxiety. I don’t sleep for weeks before, aggy and just a nervous nelly. Today, was another online meeting which I find more nerve wracking; I thought I’d dress till I make it. Turns out dressing confidently and sassy can really help, as I smashed the presentation. #confidence #ootd
Reminder to all, as lockdown begins to ease and we Reminder to all, as lockdown begins to ease and we begin to regain and relish our freedoms returning there will be chronic illness patients whose lives will have not changed. The lockdown you experienced was their life before a pandemic, they don’t have the roadmap out of lockdown. Your experience of lockdown, is another persons life. #chronicillness
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